Programme priority

Cooperating on innovation to make CENTRAL EUROPE more

competitive

Program priority specific objective

To improve skills and entrepreneurial competences for

advancing economic and social innovation in central European

regions

Project title

Innovative patient centred health care services – advantages of establishing a close network in celiac disease patient health care

Project acronym

Focus IN CD

Project index number

CE 111

Project duration

36 months

Start and end date

1.6.2016 – 31.5.2019

Partnership

1. Municipality of Maribor, Ulica heroja Staneta 1, 2000 Maribor, Slovenia – lead partner
2. University medical center Maribor, Ljubljanska ulica 5, 2000 Maribor, Slovenia,
3. E-Institute, Institute for comprehensive development solutions, Čučkova ulica 5, 2250 Ptuj, Slovenia,
4. University hospital center Rijeka, Istarska 43, 51000 Rijeka, Croatia,
5. University of Trieste, Piazzale Europa 1, 34100 Trieste, Italy
6. Association of celiac patients Primorsko-goranska County, Drage Gervaisa 52, 51000 Rijeka, Croatia,
7. Institute for Maternal and Child health  IRCCS “Burlo Garofolo”, Via dell’Istria 65/1, 34100 Trieste, Italy,
8. Ludwig-Maximilian‘s-University medical center, Lindwurmstraße 4, 80337 München, Germany,
9. Hungarian celiac society, Palanta utca 11, 1025 Budapest, Hungary,
10. Heim Pal Children’s hospital, Üllöi ut 86, 1089 Budapest, Hungary,
11. Child health foundation, Lindwurmstraße 4, 80337 München, Germany,
12. Primorje – Gorski Kotar County, Slogin kula 2/1, 51000 Rijeka, Croatia.

Programme

Interreg Central Europe Programme

Total eligible budget

1.885.418,99€

Financial construction

Programme Co-financing 80-85%

Partner Co-financing 15-20%

Project summary

Healthy and active aging is one of the greatest social challenges in EU facing longer life expectancy. Early prevention of chronic diseases that have severe impact on general well-being of patients is extremely important if we want to reach this goal and ensure sustainable health care systems in CE. Lack of development and promotion of innovative quality health services, disease management models and education have a profound negative effect. To tackle this challenge, this project will demonstrate development and pilot testing of innovative health service model in management of celiac disease (CD), by using CANVAS business model, aiming at improving knowledge, management and organizational capacities. CD is a model of a lifelong disease caused by ingestion of cereals. It affects 1-3% of population (up to 5 million in CE) of all ages. It is estimated that 80% of people having CD are un/misdiagnosed. Diagnostic delay remains 6-10 years. Undiagnosed/untreated CD leads to a number of severe (potentially preventable) complications: infertility, osteoporosis, neurological disorders, malignancies, etc., which have profound effect on quality of life. CE regions have different knowledge capacities and health care systems, which are insufficient and only partially address current problems. By transnational cooperation and analysis of differences in diagnostic approach, experts' knowledge and patient awareness and satisfaction and benchmarking of existing patient management models we will gain important data to develop e-learning tools for health care personnel and patients, to close the knowledge gap between stakeholders and to improve patient support. In each region an innovative pilot services will be tested, based on which a universal model will be designed including organizational improvements and implementation of best practices. This will enable us to develop a patient centered health care service, and thus ensure healthy and active aging of CD patients.

Project website hosted on the Central Europe Programme website

http://www.interreg-central.eu/Content.Node/Focus-IN-CD.html

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